Killer cramps. Chronically heavy periods. Brain fog. Pain during sex. Infertility. Endometriosis is no joke, and this difficult-to-diagnose condition most often strikes during the reproductive years causing fertility issues for many women. There’s no cure for endometriosis, and treatments range from medications to surgery to lifestyle changes. As with most baffling diseases, information is power.
Melvin Thornton, MD of CT Fertility in Trumbull, CT discusses five valuable resources for women concerned about endometriosis and fertility–whether you’re just starting out on your journey or have been bravely traveling this road for years.
What is Endo?
Simply stated, endometriosis is a disease in which tissue similar to the uterine lining (endometrium) is found in areas outside the uterus. This tissue is often found in the pelvic cavity, but less frequently, is also discovered on the intestines, appendix, bowel, rectum, and bladder. An estimated 1 in 10 women in the United States suffer from endometriosis, but because it’s often misdiagnosed or mistreated there are likely many more women suffering from this quality-of-life-affecting disease.
There are countless websites chock full of information about endometriosis. Two of the most informative are the Endometriosis Foundation of America and the Endometriosis Research Center. They both cover everything from potential causes of endometriosis to symptoms and treatments. Research, along with education and awareness, are also huge areas of focus for both organizations.
Information is Everything
Learning all you can about endometriosis includes staying updated on the latest science, research, treatment breakthroughs, and advocacy efforts. Endometriosis News is an invaluable resource for doing just that. It provides daily digital coverage of the latest endometriosis information. The website’s content is deep and varied, and, most importantly, frequently updated so endometriosis patients can easily stay on top of the latest developments. Our Connecticut fertility experts highly recommend the resource for any woman with Endo.
EndoStats is an ideal resource for people who like to absorb information visually. Inspired by the voices of the countless women not being heard–those misdiagnosed and living in pain–this organization studies the statistics associated with endometriosis and communicates the impact of those statistics through easy-to-digest information graphics. By simplifying the information they hope to raise awareness in order to further research and spur real change.
Advocacy is Key
Founded by two passionate advocates, and endometriosis patients, The Endometriosis Coalition works tirelessly to ͞raise awareness, promote reliable education, and increase research funding for Endometriosis.͟ They are focused on ensuring that women who suffer from endometriosis receive adequate care, and have identified four barriers to that care: lack of awareness, misinformation amongst medical professionals, lack of government funding, and lack of insurance coverage. Through their work, they hope to knock down these barriers and help countless sufferers live well with this often-frustrating disease.
Learning all you can about endometriosis puts you in a powerful position–the more you know, the easier it is to navigate this tricky condition. The resources about provide a wealth of information, but if you have questions or would like to discuss something specific, please reach out to Dr. Melvin Thornton, CT Fertility specialist at 203-373-1200.